Primary vs Secondary Lymphedema: Understanding the Differences

by | Jun 13, 2023 | Lymphedema, News

When it comes to lymphedema, it’s essential to understand the differences between primary and secondary lymphedema. These two types of lymphedema have distinct causes and characteristics. By recognizing the variations, individuals and healthcare professionals can better address and manage the condition.

 

What is primary lymphedema?

Primary lymphedema is a condition that develops without an identifiable underlying cause. It is typically the result of genetic or developmental abnormalities that affect the lymphatic system. Primary lymphedema can be present from birth or become apparent later in life, often during adolescence or adulthood. Understanding primary lymphedema helps individuals and healthcare professionals recognize the specific challenges and treatment options associated with this form of the condition.

 

What is secondary lymphedema?

Secondary lymphedema is a type of lymphedema that occurs as a result of an underlying condition or factor. It commonly arises due to treatments for cancer, such as surgery or radiation therapy, which can damage or remove lymph nodes and disrupt the lymphatic system. Other factors contributing to secondary lymphedema include trauma, infection, or chronic venous insufficiency. Understanding the secondary form of lymphedema is crucial in identifying and managing the condition effectively.

 

How do you know if you have primary lymphedema?

If you suspect you may have primary lymphedema, it’s essential to be aware of the signs and symptoms. The most common indication is persistent swelling in the affected area, such as the legs or arms. This swelling may be accompanied by a feeling of heaviness, tightness, or discomfort. Seeking medical evaluation is crucial for an accurate diagnosis of primary lymphedema. A healthcare professional can conduct a thorough examination, review your medical history, and recommend appropriate tests to confirm the diagnosis.

 

What are three conditions that can lead to secondary lymphedema?

Secondary lymphedema can arise due to various conditions or factors. Here are three common ones:

  1. Cancer treatment: Surgeries, such as lymph node removal, and radiation therapy used in cancer treatment can damage the lymphatic system and lead to secondary lymphedema. It is particularly common in breast cancer patients who have undergone axillary lymph node dissection or radiation.
  2. Surgery: Any surgical procedure that involves the removal or damage to lymph nodes can increase the risk of secondary lymphedema. This can include surgeries for melanoma, gynecological cancers, or prostate cancer.
  3. Infection: Inflammatory conditions or infections, such as cellulitis or filariasis, can disrupt the normal functioning of the lymphatic system and contribute to the development of secondary lymphedema.

Conclusion

Understanding the differences between primary and secondary lymphedema is crucial for effective management. Secondary lymphedema arises as a result of an underlying condition or factor, such as cancer treatment, surgery, or infection. In contrast, primary lymphedema occurs without an identifiable cause and is often linked to genetic or developmental abnormalities. If you experience symptoms of lymphedema or have concerns, consult a healthcare professional for proper evaluation and management. By understanding these distinctions, individuals and healthcare providers can work together to develop appropriate treatment strategies and improve the quality of life for those affected by lymphedema.

 

For more information and resources on lymphedema management, you may consider exploring the following products:

1 Hour consultation: A personalized consultation with lymphedema coach Amanda Sobey.

16-Week Ultimate Lymphedema Journey: A comprehensive program designed to guide and support individuals on their lymphedema journey.

The Lymphie Box: A curated subscription box filled with products and resources to help manage and cope with lymphedema.

Amanda Sobey

About the author

Amanda Sobey is a certified personal trainer, certified nutritionist, and lymphedema coach with over 20 years of personal experience battling lymphedema.
She is the creator of the 16-Week Ultimate Lymphedema Journey program, which combines fitness, nutrition, and self-care to empower those with lymphedema, lipedema, or lipolymphedema.
Recent posts

Manitoba Legislature Shines in Teal for World Lymphedema Day

Amanda Sobey’s battle with lymphedema began over two decades ago, stemming from a mosquito bite followed by a traumatic event that led to abnormal swelling in her right leg. Faced with a condition that is incurable, she turned her life around from despair to advocacy. Now a personal trainer, nutritionist, and lymphedema coach, Sobey’s journey from patient to president of the Lymphedema Association of Manitoba is a testament to her resilience and dedication to making a difference.

read more